Showing posts with label Alzheimer's disease. Show all posts
Showing posts with label Alzheimer's disease. Show all posts

Wednesday, October 14, 2009

"A house needs a grandma in it." ~Louisa May Alcott


I know I haven't written in a long time, haven't even felt like it. I've shared almost everything on this blog, though mostly I've kept it light and funny. Today I'll explain a little of why I've been so silent of late.

I guess things started to take a toll on me over the summer, and I didn't feel it was appropriate to be sharing with the world. As you know, I've lived with my grandparents since college. About the time I moved in, my grandmother, Lorraine, was diagnosed with Alzheimer's. Medicine can only slow down the disease so much, and the last year and a half got pretty tough. We never left Grams alone; she couldn't cook anymore; we had to lock the closet doors because she spent most of her days rummaging and "discovering" things.

And then the days started coming faster and faster when she didn't remember my grandpa. Now, my grandma has always been a feisty lady. If a stranger budged in front of her in line at Burger King, she wouldn't hesitate to put them back in their place. If someone marked their wicker basket at $5 at their garage sale, Grandma's look of contempt would not be hidden. I'm pretty sure I take after her more than anyone else. So when she started to not recognize her own husband, thinking he was a bossy stranger, you'd better believe things turned ugly.

Then she thought her dead brothers would come take her back home. Or she worried her father, dead more than 30 years, would wonder where she was. Every day--every hour--was different from the next. "Well, let's go home," she'd say. So we'd take her for long drives two or three times a night, then pull into the same driveway at the same house we'd left from, and she'd be satisfied that she'd left someplace and was now home.

When she didn't recognize us, she tried escaping the house, and it didn't usually go well. Through this past July, I'd wake up about 25-30 times a night, hyperalert for movement or noises, fearing Grandma might fall down the stairs or make her way outside. It was mentally and physically exhausting.

On Aug. 3, my grandfather, uncle and aunt took my grandma to a nursing home. The hardest part was that she had so many lucid moments. Though, yes, it was more frequent that she was constantly trying to leave, to "go home," there were just as many times when she was lovingly kissing her husband, patting his cheeks, calling him sweetheart, telling him she loved him. I can't even tell you how many times in her first three weeks at the nursing home we almost went back to bring her home again.

It's been hard on our family, especially my grandpa. He celebrated 60 years of marriage with her in June; now he drives 11 miles to visit for a couple of hours with her. Sometimes she begs to come home. More recently, she's blank. The downhill march of Alzheimer's is so much quicker than you'd expect.

Nothing is the same without her. She used to bake all the time; Gramps has quite the sweet tooth. Grandma used to work at the church, donating time and talents with cooking, cleaning, etc. She was a wonderful crafter, sewing draft dodgers, pillows, wall hangings, crazy little snowmen. She used to make these gorgeous baskets with lights and pine cones that she'd highlight with glittered paint. I remember several winters where I accompanied her to craft fairs, where she sold all her goodies. She loved coffee, and she always ate weird food combinations, like a hunk of cheese, a gingersnap cookie, and a handful of peanuts. She hated Judge Judy, or "that old bitch," as Gram called her. She loved "Wheel of Fortune" and "Jeopardy!" and playing Yahtzee. She has knickknacks galore in the house.
Everywhere you look, you see her. Except she's not there. That's the hardest of all.

Saturday, March 14, 2009

This and that

I've been a slacker when it comes to blogging. But there are so many other venues for informing friends what's going on in my life that I just get lazy when it comes to my blog. I try to be creative on Twitter, on MySpace, on Facebook, in my writing group. Leaves me too tired for anything else.

So, what's new?

Jersey, 4-1/2, and Aaliyah, 2-1/2, are both getting baptized tomorrow morning into our Lutheran church. Which reminds me, I need to buy some white tights. Uh, for the girls, not for me. My legs already look like white tights.

We're having a small lunch afterward at my grandparents' house. I will be making my magically delicious crab salad. It's Mmm, Mmm good. I know, I'm mixing my food slogans, but I'm really okay with that.

Went to Rachel's (work Rachel) house last night for some Guitar Hero. Her dog is psycho, btw. Then we watched The Dark Knight. It was my first time watching it since opening night in the theaters, so I was anxious to see if it was as good as I remembered. It was better. There are very few times when "villains" actually do their job in scaring me, and even though I'd seen the movie before, Heath Ledger still creeped the bejeezus out of me. The Dark Knight kicks The Watchmen's ass down the road and back again.

And I may start taking a closer look at moving on. From this town, I mean, not the world. haha. *fingers crossed* My grandmother's Alzheimer's is progressing steadily worse. If--when--she goes to a nursing home, I'll need to find somewhere else to live. I'm pretty sure I'll head north, back to Superior. I miss it up there.

I wish I knew how to post videos from my phone to the blog. Ya'll are missing out on some cute Jersey & Aaliyah moments. Especially Jerz's "old chap!" clips. HUHlarious!

Tonight I'm meeting my Facebook Book It! group for the first time in Eau Claire! I know most of the people already, but I'll make some new acquaintances. Plus, hello? There will be pizza, and it will be goooood.

Thursday, September 27, 2007

"But nothing's lost. Or else: all is translation / And every bit of us is lost in it ..."

So, I was going to write about how my grandparents drive me crazy with all their questions, and it was going to be funny, too. But then my grandma has been really disoriented and sick the past two days, and it just didn't seem very funny anymore.

She asked if my uncle Brad, who lives in California, was going to sing at her sister's funeral.

She kept looking around the room for Jersey, who wasn't even at the house.

She couldn't find the bathroom this morning, then couldn't remember which way to get back to her bedroom afterwards.

I can't imagine a worse ending to a life, losing one's memory. Every precious moment you've held dear, lost in blankness and confusion.